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Surveillance and research governance

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Research governance
Ethics
Information
Researcher’s responsibilities
Surveillance


Research governance

Research governance provides a framework for research and to assist in the transfer of learning and best practice to improve patient care. Research attempts to find new knowledge by asking clearly defined questions using systematic and rigorous methods.

A research governance framework describes:

  • the arrangements needed to define and communicate clear quality standards
  • the delivery mechanisms to ensure that these standards are met
  • the arrangements to monitor quality and assess adherence to standards nationally.

It is important that existing sources of evidence, especially systematic reviews, are considered carefully before undertaking new research. Research that duplicates other work unnecessarily, or is not of sufficient quality to contribute something useful to existing knowledge, is considered unethical. All proposals for healthcare research must be subjected to review by experts in the relevant fields able to offer independent advice on its quality.

Research involving medicines is regulated under the Medicines Act and all trials of new medicinal products on people must be notified to the Medicines Control Agency which can offer advice and undertake advisory inspections. Likewise, research that involves new medical devices is regulated by the Medical Devices Agency. Special regulations govern the use of human embryos, the release of genetically modified organisms and food or food processes. Data collected in the course of research must be retained for an appropriate period to allow further analysis by the original or other research teams, subject to consent, and to support monitoring of good research practice by regulatory and other authorities.

Research may involve the use of potentially dangerous or harmful equipment, substances or microbes. The safety of participants, and of research and other staff must be given priority at all times, and health and safety regulations must be strictly observed.


Ethics

All research which involves patients, users or healthcare professionals or their organs, tissue or data is referred to independent ethical review to safeguard the dignity, rights, safety and well-being of the participants. If organs or tissue are used following post mortems, informed consent is obtained from relatives, and there is a commitment to respectful disposal of material. If animal use is unavoidable the highest standards of animal husbandry are maintained under veterinary supervision.


Information

Information on all research being undertaken should be easily accessible to patients, users and healthcare professionals and in a variety of formats. At the end of a study all those who participated in the research (including the relatives of deceased patients who have consented to the use of organs or tissue in the research) are informed of the findings.


Researcher’s responsibilities

When undertaking research it is the researcher who is responsible on a daily basis for the conduct of the research, this includes:

  • following agreed protocols
  • helping healthcare professionals to ensure that participants receive appropriate care while involved in the research
  • protecting the integrity and confidentiality of clinical and other records and data generated by the research
  • reporting any failures in these areas plus adverse drug reactions and other events or suspected misconduct using the agreed reporting channels.


Surveillance

Surveillance of hospital-acquired infections has been a key element of all infection control programmes since the 1970s. There is no single or ‘correct’ method of surveillance and it can form part of clinical audit and clinical governance helping to reduce the frequency of adverse events of infection or injury. The benefits of surveillance are that it tends to allow for comparison of data over time.

Mandatory surveillance of MRSA bacteraemias in England have been reported since April 2001, similar reporting systems are undertaken in Scotland, Wales and Northern Ireland. For England the collection, analysis, and interpretation of such information and dissemination of results is undertaken by the Health Protection Agency. The HPA publishes a table that identifies key areas of surveillance.

In Scotland this is undertaken by Health Protection Scotland (HPS) through SCIEH and information can be accessed via Scotland health on the web (SHOW)

For Wales surveillance data can be accessed via the Infection and Communicable diseases service website

For Northern Ireland surveillance data can be accessed via the Northern Ireland Healthcare-Associated Infection Surveillance Centre

This content is not intended nor does it replace individual professional advice. Please contact a healthcare professional or seek advice from NHS Direct (0845 46 47) NHS Direct Wales (0845 46 47) or NHS 24 in Scotland (08454 24 24 24).

last reviewed 01 March 2005
last updated 25 February 2005

 

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